Unraveling Hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disorder
Understanding the Complexities of hEDS and HSD
hEDS/HSD Educational Series
*Donation based: In person and Virtual options*
Embedded Files
Session One: Understanding hEDS & HSD
Overview + comorbidities
October 23, 2025 from 6:30–8:00 pm CST
*Pay what you can $0-$50, in person and virtual options*
We’re kicking off a six-part series with an evening dedicated to the foundations of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD)!
In this first session, you’ll:
Learn what hEDS & HSD are and how they affect the body
Explore the process of getting a diagnosis
Understand common co-occurring conditions
Connect with others who “get it”
Build confidence in navigating hypermobility
Whether you’re at any stage of diagnosis, supporting a loved one, or simply curious about these often-misunderstood conditions, this session is a welcoming place to learn, ask questions, and feel less alone.
Come curious, leave connected!
Session Two:
Stress strategies and mental health impacts
November 20, 2025 from 6:30–8:00 pm CST
*Pay what you can $0-$50, in person and virtual options*
In this session, we’ll explore what stress really is — how our bodies perceive it, why those with hEDS/HSD may experience it differently, and what we can do to regulate and restore balance.
Guest Speakers!
Rose Rudis RN, CCRN, Chronic & Invisible Illness Coach, HeartMath-IT
Ashley Hartmann Annis, Full spectrum birth doula, TRE-Provider, SEP-IT
In this second session, you’ll:
Learn what how our bodies identify stress
Explore simple ways to bring mindfulness and body awareness into your day
Understand the effects stress has on the body
Connect with others who “get it”
Build confidence in trusting your own awareness
Together we will explore ways to tune into the body, calm the nervous system, support emotional-wellbeing, and create space for everything that comes up with the ongoing demands of chronic conditions.
Come curious, leave connected!
Session Three:
Pain, CRPS, and Management Strategies
December 17, 2025 from 6:30–8:00 pm CST
*Pay what you can $0-$50, in person and virtual options*
Pain with hEDS & HSD can be complex, layered, and deeply personal. In this session, we will unpack some of what's happening in the body when pain persists, how central sensitization and CRPS (Complex regional pain syndrome) can develop, and how a broad spectrum of conventional and holistic strategies can help support pain management.
Guest Speakers!
Dr. Angel Marchant DO
Jaime Irving LAc, LMT
Noor Bontz APNPC-AG
Anders Totten LMT, ATSI
In this third session, you’ll:
Learn how pain is processed in the body and nervous system
Explore approaches for managing chronic and neuropathic pain, including CRPS
Hear perspectives from medical, integrative care, and lived experience lenses
Connect with others navigating similar challenges
Together we will ways to work with the body. Find pathways towards relief, restoration, and renewed trust in the body's capacity to adapt and heal.
Come curious, leave connected!
Session Four:
hEDS & HSD Moves: Exercise and Movement
Date: January 15th, 2026 from 6:30–8:00 pm CST
*Pay what you can $0-$50, in person and virtual options*
Movement can be one of the most confusing, as well as powerful, parts of living with hEDS & HSD. In this session, we will explore how to move safely and confidently, support joint stability, and find forms of activity that feel nourishing and stabilizing.
Guest Speakers!
Amanda Bauer, CPT/Z Health R, I, ST, 9S
In this fourth session, you’ll:
Learn how to approach movement with curiosity and body awareness
Explore strength building and pacing strategies that support long term function
Discover gentle ways to reintroduce movement after an injury or flare
Connect with others who are redefining what movement and exercise look like for them
Together we will reimagine movement as a practice of care, stability, and trust. Building strength in awareness of the hypermobile body's unique needs.
Come curious, leave connected!
Session Five:
Nutrition Challenges & Changes
Date: TBD (February 2026) from 6:30–8:00 pm CST
*Pay what you can $0-$50, in person and virtual options*
Nutrition can feel complicated when living with hEDS or HSD—between food sensitivities, GI symptoms, energy fluctuations, and medication effects, it’s easy to feel overwhelmed. In this session, we’ll unpack the most common nutrition challenges and explore realistic, compassionate ways to support your body’s needs.
Guest Speakers!
We’re excited to be gathering another thoughtful group of speakers for this session.
Check back soon for updates as our lineup is confirmed!
In this fourth session, you’ll:
Learn how connective tissue disorders can impact digestion and nutrient absorption
Explore gentle approaches to nourishing yourself when eating feels hard
Learn strategies for balancing energy, hydration, and electrolytes
Hear insights on how nutrition, the nervous system, and pain are interconnected
Connect with others finding creative, flexible ways to support their well-being through food
Together, we’ll explore ways to approach nourishment with curiosity, compassion, and flexibility—honoring your body’s unique needs and experiences, and creating space to make choices that feel safe and sustainable.
Come curious, leave connected!
Session Six:
Hormones
Date: TBD (March 2026) from 6:30–8:00 pm CST
*Pay what you can $0-$50, in person and virtual options*
Hormones play a powerful role in how our bodies function, regulate, and recover and for those with hEDS & HSD the relationship can be complex. In this session, we will explore how hormonal changes throughout life impact connective tissue, pain, fatigue, and overall well-being.
Guest Speakers!
We’re excited to be gathering another thoughtful group of speakers for this session.
Check back soon for updates as our lineup is confirmed!
In this fifth session, you’ll:
Learn how hormones influence collagen, inflammation, and the nervous system
Explore the interplay between menstrual cycles, perimenopause, and symptom patterns
Discover ways to support hormonal balance
Connect with others navigating similar shifts and questions
Together, we’ll look at hormones through a whole-body lens—making sense of the patterns, fluctuations, and possibilities for more steadiness and understanding in your body.
Come curious, leave connected!
*Pay what you can $0-$50, in person and virtual options*
Save your seat today! Click below!
Disclaimer: The hosts of this educational series are not licensed physicians or healthcare providers. They do not diagnose, treat, or provide medical advice regarding hypermobile Ehlers-Danlos syndrome (hEDS), hypermobility spectrum disorder (HSD), or any other medical condition. The content presented is intended solely for informational and educational purposes only and should not be construed as medical advice, therapy, diagnosis, or treatment. Viewers are encouraged to consult with qualified healthcare professionals regarding any medical concerns or conditions.
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